Sibling perspectives: Learning from a brother or sister with a rare epilepsy


(BPT) – There are many different types of epilepsies (the fourth most common neurological disorder in the U.S.); but rare forms of the disease can be especially debilitating and disruptive. These include infant- and childhood-onset developmental epileptic encephalopathies (DEEs, more simply called “rare epilepsies”) characterized by unpredictable and often prolonged seizures, frequent medical emergencies and…

Read Full Post »

Inaugural ILD Day Brings Awareness for Interstitial Lung Disease

doctor with patients

(BPT) – Nine patient advocacy groups partner to educate about ILD on September 15, 2021 It’s very possible you’ve never heard of interstitial lung disease (ILD), despite the more than 200 types of ILD that affect over 250,000 Americans. That’s why nine patient advocacy organizations have partnered to raise awareness for ILDs with the first-ever…

Read Full Post »

20 years later: Ground Zero work led to pulmonary fibrosis

world trade centers rubble

(BPT) – Twenty years after 9/11, some World Trade Center first responders still struggle with long-term health complications brought on by the catastrophic event. For Tom Frey, a former New York City detective, the consequences started with Hodgkin’s Lymphoma – a blood cancer that can be linked back to inhaled dust from his rescue and…

Read Full Post »

Living with paralysis? Free resources answer questions, provide support

person in wheelchair

(BPT) – Paralysis is life altering for the person impacted, their families or friends, and their caregivers. Whether you are newly paralyzed or have been living with paralysis for many years, it’s normal to have questions. Fortunately, there are free, high-quality resources that provide answers and information to help no matter the concern. What causes…

Read Full Post »