Monthly Archives: September 2021

Sibling perspectives: Learning from a brother or sister with a rare epilepsy

siblings

(BPT) – There are many different types of epilepsies (the fourth most common neurological disorder in the U.S.); but rare forms of the disease can be especially debilitating and disruptive. These include infant- and childhood-onset developmental epileptic encephalopathies (DEEs, more simply called “rare epilepsies”) characterized by unpredictable and often prolonged seizures, frequent medical emergencies and…

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Inaugural ILD Day Brings Awareness for Interstitial Lung Disease

doctor with patients

(BPT) – Nine patient advocacy groups partner to educate about ILD on September 15, 2021 It’s very possible you’ve never heard of interstitial lung disease (ILD), despite the more than 200 types of ILD that affect over 250,000 Americans. That’s why nine patient advocacy organizations have partnered to raise awareness for ILDs with the first-ever…

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