You can stop retinal disease from stealing your vision

people on beach

(BPT) – For decades, Glenroy Washington happily worked as a professional musician, a passion that led him around the world. Then while on tour in Europe, he noticed something was wrong with his eyesight, and that’s when his life began to change. Washington has diabetes and tried to keep his A1C, or blood sugar, under…

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Sibling perspectives: Learning from a brother or sister with a rare epilepsy

siblings

(BPT) – There are many different types of epilepsies (the fourth most common neurological disorder in the U.S.); but rare forms of the disease can be especially debilitating and disruptive. These include infant- and childhood-onset developmental epileptic encephalopathies (DEEs, more simply called “rare epilepsies”) characterized by unpredictable and often prolonged seizures, frequent medical emergencies and…

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Inaugural ILD Day Brings Awareness for Interstitial Lung Disease

doctor with patients

(BPT) – Nine patient advocacy groups partner to educate about ILD on September 15, 2021 It’s very possible you’ve never heard of interstitial lung disease (ILD), despite the more than 200 types of ILD that affect over 250,000 Americans. That’s why nine patient advocacy organizations have partnered to raise awareness for ILDs with the first-ever…

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20 years later: Ground Zero work led to pulmonary fibrosis

world trade centers rubble

(BPT) – Twenty years after 9/11, some World Trade Center first responders still struggle with long-term health complications brought on by the catastrophic event. For Tom Frey, a former New York City detective, the consequences started with Hodgkin’s Lymphoma – a blood cancer that can be linked back to inhaled dust from his rescue and…

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